Includes academic researcher members from Ulster University and the Administrative Data Research Centre (Northern Ireland), as well as members from Neurodiversity Spark and other sectors, and is supported by DARE UK.
About the Project
The Sensitive Evidence Tracking (SET) Working Group is exploring how information about ADHD, including prescribing data and other administrative sources is used or not used across Northern Ireland.
Although large amounts of data are collected, it is often unclear how that evidence shapes decisions or reaches the people it could benefit. This project, led by Dr Enya Redican at Ulster University, brings together representatives from health, education, justice, voluntary and community organisations, alongside lived-experience members from Neurodiversity Spark, to map how ADHD-related evidence travels between systems.
We are inviting a person with lived experience of ADHD to join as Public Co-Chair of the Working Group.
You will share leadership with the academic research chairs from Ulster University and help ensure that lived experience shapes every stage of the project, from planning and workshops to the final reports and audio resources.
Help plan and co-facilitate Working Group meetings and events
Bring lived experience of ADHD to guide discussions and decisions
Collaborate with researchers to connect data insights with real-life experience
Contribute to clear, accessible reports and audio roadmaps that share what is learned
No prior research experience is required. Support and training will be provided.
You will receive payment for your time and contributions.
Tailored support will be available, including:
Flexible meeting formats and communication options
Optional data-literacy and evidence translation sessions
Access to check-ins and mentoring from Ulster University and Neurodiversity Spark
Travel and reasonable expenses covered
Approximately 2–3 hours per month, including meetings and preparation.
Most sessions will take place online, with occasional in-person meetings in Northern Ireland.
Attendance will be required at two all-day in-person working group members, an all-day public engagement event, and a half-day UK-wide event. All events except the UK-wide event will take place in-person. Hybrid options will also be available. Approximately 16 hours of your time will be required for contributing to the project outputs.
We’d love to hear from you if you:
Have lived experience of ADHD (diagnosed or self-identified)
Want to help improve how evidence informs practice and policy
Enjoy collaboration and open discussion
Believe that research should be shaped by the people it affects
There is no perfect background for this role. What matters is your perspective and willingness to take part.
To express your interest, please complete our short online form using the link below. You can share your responses in writing, audio or video format.
👉 Complete the Expression of Interest Form
Deadline: Friday 7th Nov 2025
We will arrange an informal conversation (not a formal interview) to make sure the role feels right for you.
This Working Group is the first of its kind in Northern Ireland. It looks at how ADHD-related data moves through our systems and whether it leads to real-world change.
By including lived experience in leadership, we are working together to make evidence meaningful, and to build connections between research, policy and people.
Involves academic researcher members from Ulster University and the Administrative Data Research Centre NI, as well as members from Neurodiversity Spark and other sectors, and is supported by DARE UK.
